Chiropractic Round 3 for Torticollis: Progress Pictures

Based on the results of the thermal scans, Kellyn's third round of chiropractic adjustments reduced a significant amount of nerve compression. Although encouraging news, I remind myself of the original reason I sought out chiropractic in the first place: torticollis. So the real question is whether or not the adjustments improved her mild (yet so stubborn) torticollis. Its tricky to assess for myself, as her torticollis presentation over the past few months is mild, subtle, and fleeting. One moment she's significantly tilting her head, the next moment her head is perfectly midline. Even by the time I grab my camera to snap a pic of her tilting, the tilt will disappear that fast. Anyways, here are some pictures of Kellyn at the beginning and end of chiropractic round 3.

After 1st Adjustment of Chiropractic Round 3 (9/05/2014):

Head tilt not too visible here

Restarting Torticollis Exercises & Chiropractic

So a year has passed since Kellyn was first diagnosed with torticollis. I mentioned previously that her PT was pleased with her improvement and gave us the OK to stop doing her torticollis exercises at home. However, I'm still not entirely satisfied with Kellyn's head positioning. I notice that she has a habit of slightly tilting her head on a regular basis. In addition, I have noticed her restarting her bad habit of curving her body into a c-shape. For the amount of time and energy poured into her treatment, I would have thought her head tilt and trunk curvature would have been entirely eliminated. Therefore, I decided to start doing her torticollis exercises with her again. I dedicate about ten minutes each morning to her exercises. Now that she's a very active and mobile toddler, its a lot more difficult to get her to cooperate with the exercises. I basically get her distracted with TV and run through our little torticollis exercise routine.

This slight right tilt is Kellyn's normal. It's obviously very mild, but enough for me to notice.

Torticollis Clinic Discharge

Kellyn had her third appointment with the torticollis clinic at Children's National Medical Center today.  And the physical therapist and nurse observed Kellyn's head positioning while walking around.  They also tested her neck strength and range of motion.  They thought she looked great and that she could be discharged from their clinic.  And the best news of all is that I no longer need to do her torticollis exercises.  Praise the Lord!  I will gladly welcome back the extra twenty minutes into our day that was previously consumed by these exercises.

Happy to spend more time playing instead of doing her dreaded torticollis exercises

Early Signs of Torticollis

Kellyn was officially diagnosed with torticollis at seven months.  Unfortunately, she was showing signs of this condition well before that.  If I had known what to look for, I could have had her diagnosed way earlier and her condition would have been much easier to correct.  Torticollis treated before four months has the best prognosis.  That's why its so important for new parents to be mindful of the signs and symptoms of torticollis, so that they can catch it and correct it as fast as possible.

At the time, I never thought anything of her head tilt.

Torticollis Pictures: 7 months of PT

It's crazy to think that Kellyn has been doing physical therapy for her torticollis for almost seven months.  That's equates to almost half of her life considering she'll be 14 months in a little over a week.  I feel like her torticollis progress has plateaued over the past few months.  In my opinion, the head tilt doesn't look more pronounced, but it also doesn't look much better than it did a few months ago.  That's a little frustrating to me since I dedicate a good chunk of time daily to her torticollis exercises.  I just want to know that the hard work I'm putting in is actually making a difference.  On a positive note, her motor skills are continually progressing.  Over the past few weeks, she went from taking a couple steps to taking several steps. We still have tons of spills and I would not officially qualify her as a walker yet, but she's certainly on her way.  Anyways, check out her progress pictures below.

Pretty accurate representation of her current head tilt. Happy about her great progress
since the beginning, but frustrated that progress plateaued in the past few months

Discharged from Outpatient PT

Yesterday was one of Kellyn’s outpatient physical therapy re-evaluations for her torticollis. The physical therapist officially discharged Kellyn from the program! After about five months of outpatient physical therapy, we are finally done. All the hard work is finally paying off. I’m so excited, relieved, and thankful.

Hat's off to Kellyn for getting discharged from outpatient physical therapy!

TOT Collar Video Review & Product Demo

Here is my second product review of the TOT Collar for treatment of torticollis.  When my daughter was seven months old, I tried this out on my daughter and it didn't too work well for her at that time.  I think her neck was too short and chunky at that age for it to work correctly.  Thankfully, I tried it again when she was an older baby and it worked a whole lot better for her.  I think the TOT Collar is a great supplement to regular physical therapy for torticollis. 

Torticollis Regression Due to Illness

So Kellyn has a head tilt regression due to sickness. Poor girl has a runny nose, cough, chest congestion, and wheezing. Her torticollis was really looking better up until recently. However, once the onset of her illness occurred, her head tilt has increased. She's having trouble eating, sleeping, and especially doing her physical therapy exercises. She cries and resists her stretches and strengthening exercises much more than usual.

Still managed to get a smile out of this little sick one.

Torticollis Pictures: 11 Weeks of PT

So it's about that time again when I post Kellyn's progress pictures from physical therapy for her torticollis.  Comparing to her six week pictures, I would say she has improved tremendously.  Now keep in mind though that her six week pictures were taken on a day that she was having a "bad torticollis day".  Even still, I notice a great improvement overall as compared to when she first started physical therapy.

Her right head tilt is negligible in this picture,
and her right neck depression looks much less noticeable.

Torticollis Physical Therapy Re-evaluation

Kellyn had her eight week re-evaluation with her outpatient physical therapist today. Kellyn must have known she had to perform because she was having "a good torticollis day." Anyways, the physical therapist noticed continued improvement in her muscle strength and flexibility. She was also happy to see that Kellyn's head tilt was negligible while lying on her back.

As you can see, Kellyn's head looks nice and straight while lying down.
Maybe she's showing off for her big brother.

Kinesio Tape for Torticollis: Round 2

So Kellyn's first application of Kinesio Tape did not seem to improve her torticollis.  It was applied to the affected side of her neck (the side she tilts to) and in a method to encourage muscle relaxation.  After taking a little over a week break from the Kinesio Tape, our physical therapist from the early intervention program tried a different technique on Kellyn.  She applied the tape to the unaffected side of her neck to encourage muscle facilitation.  This makes sense since the unaffected side of Kellyn's neck has weaker muscles.

This is the second application of Kinesio Tape on her neck for torticollis.

1st Chiropractic Adjustment for Torticollis

As I mentioned before, Ryan and I have been considering supplementing Kellyn's physical therapy with chiropractic treatment. Before Kellyn got diagnosed with torticollis, I would have never imagined I would be taking my baby to a chiropractor. However, torticollis is a stubborn little condition that improves very gradually. So, after two months straight of daily physical therapy exercises, I was ready to take it up a notch. After hearing such awesome reviews about chiropractic from other "tort parents", I started wondering if perhaps it could work for Kellyn. After praying, researching, watching YouTube videos of pediatric adjustments, and having a consultation with the chiropractor, we finally felt comfortable scheduling the chiropractic appointment for Kellyn.

Kellyn's torticollis presentation one day after her first chiropractic adjustment.

Seven Weeks into Physical Therapy

So here are some pictures seven weeks into physical therapy. Although Kellyn has had some plateaus and regressions since her four week pictures, today happened to be a "good torticollis day." I knew I had to capture it on camera. Basically, Kellyn was holding her head at mid line a lot more frequently than usual. In addition, she was not raising her right shoulder as much as she normally does.

Since she's looking straight ahead, her head tilt is less noticeable here.
Although she still has a slight C-shaped curvature in her trunk,
it's improved dramatically since the beginning of PT.

 

Six Weeks of PT

So I'm not as excited about these six week pictures as I was about the four week pictures.  As you can see her torticollis looks worse in these pictures than it did just a couple of weeks prior.  Her tilt has likely worsened because she is teething.

Tilt Regression

Disappointment and frustration are starting to creep up on me again.  I felt like Kellyn's four-week physical therapy evaluation went so well and that she was improving.  I thought it was going to be a continuous improvement from there on out.  But recently, it looks like her torticollis got worse.  She seems to be tilting her head more and doing this more frequently.  And she seems to be more resistant to me stretching her neck in the opposite direction.  It's like her neck is completely stubborn and doesn't want to change.

I don't think Kellyn was too happy about getting her picture taken here.

Overwhelmed with the Treatment Process

The past couple weeks has been pretty hectic for our family.   Ryan's back has been really bothering him and he is pretty limited to how he can help with the kids or with housework.  Unfortunately, he is now unable to help me get Kellyn's in-home exercises done, so its solely up to me to make sure this gets done.  Also, we have been spending a lot of time researching and shopping around for a new car since our car got totaled from the car accident two weeks ago.  In addition, we have also had so many things like doctor's appointments and various commitments to go to.  

With so much going on, its been tricky to get in the recommended minimum of five sets of physical therapy in-home exercises for Kellyn.  I feel that Kellyn's head tilt has gotten worse recently because I haven't been working with her as frequently at home.  Regardless of what else is going on, I need to remind myself daily to make her in-home exercises a priority.  Most days, I find it unrealistic to get all five sets of her exercises done, while also attending to daily household responsibilities and taking care of my family's needs.  Each day, I feel like I can't win no matter how hard I try.  

Physical Therapy 4-week Evaluation

So today was a big day for us because it was Kellyn's 4-week evaluation at her outpatient physical therapy clinic.  Overall, it went pretty well.  Four weeks ago, Kellyn measured at about an eighteen degree tilt.  Today Kellyn was measuring at about a ten degree tilt.  So she is definitely tilting her head less.  The physical therapist also noticed improved strength in both her neck and trunk.  *Anna was also happy with how Kellyn's gross motor skills were progressing. She said that Kellyn has progressed faster than she expected in many areas.

Kellyn around the time of her four week physical therapy evaluation. 

Four Weeks into Physical Therapy

Here are some updated pictures of Kellyn after four weeks of physical therapy.  Her left trunk tilt is much less pronounced and her right head tilt has decreased some, as well.  Her physical therapist noticed that she tilts her head more when she is looking down.  Kellyn is more inclined to keep her head straight when she is looking straight ahead or laying down on her back.  What you won't be able to see in these pictures is how much stronger she is getting at doing her strengthening exercises.  She has also had amazing progress in her motor skill progression.  In addition, I believe her facial symmetry is improving.  I am very pleased with her progress so far.

She holds her head up much more straight when she is looking straight ahead.

Cranial Facial Appointment

Yesterday, my daughter had an appointment with a pediatric cranial facial specialist.  As I mentioned in a previous post, Kellyn has some of the classic facial asymmetries that torticollis can cause: one eye smaller, one cheek fuller, one jawline more pronounced, depression on one side of her neck, and a flat spot on the back of one side of her head.  In my opinion, they are very minor and barely noticeable unless you were looking for them.  But I wanted the doctor to take a look at her and see what he thought.

The cranial facial specialist was outstanding.  He carefully evaluated every facial feature while Kellyn made goo-goo eyes at him.  After his analysis, he confirmed that she did have some minor facial asymmetries and minor plagiocephaly that that were caused by the torticollis.  However, he said that everyone's face is asymmetrical and that her facial asymmetries were not outside the normal range.  He said that the only reason I probably noticed it is because I am her mother and that the average person wouldn't have even noticed.  Phew!  That felt great to hear, especially from a specialist who stares at faces all day long.  If anyone would be critical about that sort of thing, I am assuming it would be him. 

Before Pictures

Here are some pictures of Kellyn before or at the beginning of physical therapy.  Her physical therapist suggested we take pictures of Kellyn regularly.  That way, I can track her progress since its hard to notice the changes since I'm with her all the time.  I'm trying to see if her neck and trunk straighten up and her slight facial asymmetries resulting from the torticollis resolve themselves over time.

 This is the back view of her head tilt at approximately 1 week into physical therapy.